My son's genetic, life-threatening condition robs him of many things a child should be able to enjoy. Bikeriding being one of the many. His condition makes him lose his balance often (he falls often), he cannot regulate his body temperature so over and under heating can be crucial if not caught early on. His tight scaly skin makes tiny cracks and fissures that are incredibly painful. He has severe joint pain, skin pain, body aches daily, back pain we treat with cbd and opioids. He's a miracle.  

My son's genetic, life-threatening condition robs him of many things a child should be able to enjoy. Bikeriding being one of the many. His condition makes him lose his balance often (he falls often), he cannot regulate his body temperature so over and under heating can be crucial if not caught early on. His tight scaly skin makes tiny cracks and fissures that are incredibly painful. He has severe joint pain, skin pain, body aches daily, back pain we treat with cbd and opioids. He's a miracle.