My daughter’s disease impairs her muscles and can impair her liver. Currently she is most dealing with the muscle impairment. She cannot crawl, scoot, stand or walk and relies on a wheelchair. She has also been dealing with Neuromuscular Scoliosis as a side effect of the muscle weakness as well. She is the most bubbly, smart most outgoing little girl and just wants to do everything her siblings can do. She will most likely never walk and I just want to give her the best childhood she can have!  

My daughter’s disease impairs her muscles and can impair her liver. Currently she is most dealing with the muscle impairment. She cannot crawl, scoot, stand or walk and relies on a wheelchair. She has also been dealing with Neuromuscular Scoliosis as a side effect of the muscle weakness as well. She is the most bubbly, smart most outgoing little girl and just wants to do everything her siblings can do. She will most likely never walk and I just want to give her the best childhood she can have!